For the past week, Drs re-do some tests, including CT scan(x2), MRI(x2), EEG tests, blood tests etc. Unfortunately, all tests came out clear. They are still unable to identify the cause.
Currently she is in stable condition as all organs still functioning very well.
(2008-11月-25日.....英国时间: 2335晚上
过去一周，医生们重新对PS做一些测试,包括电脑断层扫描(2回),磁共振成像扫描(2回),脑电图检查,抽血化验等.
但是,所有的测试结果都很正常. 这意味着他们仍然无法找出病因.
目前她的情况很稳定,身体各器官仍完好无损.)
Tuesday, 25 November 2008
Monday, 17 November 2008
2008-Nov-17..... 1225pm(UK)
Nothings change.
PS still heavily sedated and cause unknown.
And mum arrived safely.
(2008-11月-17日.....英国时间: 1225中午
没有什么变化。
PS仍然服用大量的镇静剂,仍不明其病因。
母亲已安全抵达.)
PS still heavily sedated and cause unknown.
And mum arrived safely.
(2008-11月-17日.....英国时间: 1225中午
没有什么变化。
PS仍然服用大量的镇静剂,仍不明其病因。
母亲已安全抵达.)
Thursday, 13 November 2008
2008-Nov-13..... 2357pm(UK)
Worst nightmare: fitting is back.
All sedation drugs are infusing back.
Cause still unknown.
(2008-11月-13日.....英国时间: 2357晚上
噩梦：又开始抽搐了.
必需重新启动所有的镇静药物.
仍然不明其病因.)
All sedation drugs are infusing back.
Cause still unknown.
(2008-11月-13日.....英国时间: 2357晚上
噩梦：又开始抽搐了.
必需重新启动所有的镇静药物.
仍然不明其病因.)
Monday, 10 November 2008
2008-Nov-10..... 2350pm(UK)
Last Thursday and Friday weren't PS's blessed days. Her illnesses got worsen during these two days.
She was meant having another MRI scan on Friday but due to her illnesses, they delayed it.
Dr had to prescribe a new drug on late Friday to calm her.
However, she got minor side effects (rashes) on next day (Saturday) due to the new drug.
Under that circumstances, dermatologist stepped in and prescribes another drug to overcome the side effects.
Finally; over the weekend, both drugs managed to: gradually reduce the fits and ease the rashes.
At last, she managed to attend her second MRI test today. (However, the test results still shown negative, i.e. no cause found).
Since yesterday (Sunday) 3pm till just now Monday (1005 pm), which nearly 31 hrs, there isn’t any fit reported (finger crossed). But… (there always a “but”), she is still heavily sedated.
To get a conclusive result, the sedation needs carefully and gradually reduce over the week (bear in mind that she is still having at least 6 different types of sedation drugs at the same time).
(2008-11月-10日.....英国时间: 晚上十一时五十分
上周四和周五都不是PS 的吉祥日. 这两天她的病情恶化了.
本来上周五她会被进行另一次MRI扫描,但由于她的新病情,他们不得已的推迟这项计划。
医生必须在周五晚上开了新处方=新的药物以让她平静.
然而，新的药物使她在隔天(周六)有轻微的副作用（红疹).
根据这一情况，皮肤科医生介入了, 开了新处方来克服副作用。
最后，在上周末，这两种药物成功的：逐步减少了抽搐和缓解皮肤的红疹。
今日她终于进行第二次核磁共振测试（尽管测试结果仍然呈阴性，即还没有找到病源).
然而从昨日(星期日)下午三时到刚才星期一(晚上十时零五分),将近31小时了,PS並没有发生任何抽搐.但是...(总是有"但是"),她仍然是在很重的镇静剂下休养.
要获得进一步的确认,至少要一周时间,因为需要仔细和逐渐减少镇静剂.(别忘了她现在在同一时间内,服用至少6种不同类型的镇静药物).
She was meant having another MRI scan on Friday but due to her illnesses, they delayed it.
Dr had to prescribe a new drug on late Friday to calm her.
However, she got minor side effects (rashes) on next day (Saturday) due to the new drug.
Under that circumstances, dermatologist stepped in and prescribes another drug to overcome the side effects.
Finally; over the weekend, both drugs managed to: gradually reduce the fits and ease the rashes.
At last, she managed to attend her second MRI test today. (However, the test results still shown negative, i.e. no cause found).
Since yesterday (Sunday) 3pm till just now Monday (1005 pm), which nearly 31 hrs, there isn’t any fit reported (finger crossed). But… (there always a “but”), she is still heavily sedated.
To get a conclusive result, the sedation needs carefully and gradually reduce over the week (bear in mind that she is still having at least 6 different types of sedation drugs at the same time).
(2008-11月-10日.....英国时间: 晚上十一时五十分
上周四和周五都不是PS 的吉祥日. 这两天她的病情恶化了.
本来上周五她会被进行另一次MRI扫描,但由于她的新病情,他们不得已的推迟这项计划。
医生必须在周五晚上开了新处方=新的药物以让她平静.
然而，新的药物使她在隔天(周六)有轻微的副作用（红疹).
根据这一情况，皮肤科医生介入了, 开了新处方来克服副作用。
最后，在上周末，这两种药物成功的：逐步减少了抽搐和缓解皮肤的红疹。
今日她终于进行第二次核磁共振测试（尽管测试结果仍然呈阴性，即还没有找到病源).
然而从昨日(星期日)下午三时到刚才星期一(晚上十时零五分),将近31小时了,PS並没有发生任何抽搐.但是...(总是有"但是"),她仍然是在很重的镇静剂下休养.
要获得进一步的确认,至少要一周时间,因为需要仔细和逐渐减少镇静剂.(别忘了她现在在同一时间内,服用至少6种不同类型的镇静药物).
Friday, 7 November 2008
2008-Nov-06..... 2300pm(UK)
Nothing changes.
Spoken to 2 consultants, i.e. ICU and Neurologist, agreed to apply steroid to PS.
Lets see if there is any improvement while waiting for test results (which some might take up weeks).
Will redo MRI scan again this week.
(2008-11月-06日.....英国时间: 2300晚上
PS 没有什么进展。
已和2位顾问讨论,即重症监护病房和神经系顾问,同意给以PS服用类固醇.
在等待多项检验结果的同时(有些可能需要长达几个星期),让我们看看是否有任何改善.
本周或将重做MRI扫描。)
Spoken to 2 consultants, i.e. ICU and Neurologist, agreed to apply steroid to PS.
Lets see if there is any improvement while waiting for test results (which some might take up weeks).
Will redo MRI scan again this week.
(2008-11月-06日.....英国时间: 2300晚上
PS 没有什么进展。
已和2位顾问讨论,即重症监护病房和神经系顾问,同意给以PS服用类固醇.
在等待多项检验结果的同时(有些可能需要长达几个星期),让我们看看是否有任何改善.
本周或将重做MRI扫描。)
Thursday, 6 November 2008
2008-Nov-05..... 2000pm(UK)
7 days passed.
The blood test results came back negative again.
The doctors will do more test and felt frustrated too. They might redo some of the test.
Tomorrow will have a discussion with consultant. They are looking for rare disease cause now.
It is killing me to update everyday without any significant improvement. I might just leave a simple note here until any breakthrough.
Sorry and thanks for all your cares.
(2008-11月-05日.....英国时间: 2000晚上
已经7天了.
昨天的血液检测结果还是呈阴性(没有问题)。
医生们也很懊恼,他们将做更多的测试,有些可能会重做.
明天将与医生顾问讨论。他们正在往罕见的疾病中寻找症状.
我也很懊恼与担心,每天都无法更新一些好消息.
我可能明天开始只是简单的留言一直到有任何突破为止.
非常抱歉,并感谢大家的关怀.)
The blood test results came back negative again.
The doctors will do more test and felt frustrated too. They might redo some of the test.
Tomorrow will have a discussion with consultant. They are looking for rare disease cause now.
It is killing me to update everyday without any significant improvement. I might just leave a simple note here until any breakthrough.
Sorry and thanks for all your cares.
(2008-11月-05日.....英国时间: 2000晚上
已经7天了.
昨天的血液检测结果还是呈阴性(没有问题)。
医生们也很懊恼,他们将做更多的测试,有些可能会重做.
明天将与医生顾问讨论。他们正在往罕见的疾病中寻找症状.
我也很懊恼与担心,每天都无法更新一些好消息.
我可能明天开始只是简单的留言一直到有任何突破为止.
非常抱歉,并感谢大家的关怀.)
Tuesday, 4 November 2008
2008-Nov-04..... 1345pm(UK)
Not much different for PS today.
Dr. increased back her sedation to the level she had in her first 2 days in ICU.
Lowered down her sedation in last 2 days seems triggered the fits more frequently.
Same medication prescribed.
Yesterday EEG test did pick up something but still unknown about the cause.
Now, neurologist tends to dismiss the possibility of infection. In fact, they might start looking for trace of autoimmune disease.
(2008-11月-04日.....英国时间: 1345下午
PS今天没有什么不同.
医生增加了她的镇静剂份量,恢复了她首两天在重症监护病房的份量.
过去2天因降低了她的镇静剂份量,似乎引发了更频密的抽搐.
PS次还是服用同样的药物处方.
昨天的脑电图测试终得到了反应,但仍不明其原因。
现在神经学家试图去除PS受感染的可能性。事实上,他们好像开始寻找自身免疫性疾病的痕迹.)
Dr. increased back her sedation to the level she had in her first 2 days in ICU.
Lowered down her sedation in last 2 days seems triggered the fits more frequently.
Same medication prescribed.
Yesterday EEG test did pick up something but still unknown about the cause.
Now, neurologist tends to dismiss the possibility of infection. In fact, they might start looking for trace of autoimmune disease.
(2008-11月-04日.....英国时间: 1345下午
PS今天没有什么不同.
医生增加了她的镇静剂份量,恢复了她首两天在重症监护病房的份量.
过去2天因降低了她的镇静剂份量,似乎引发了更频密的抽搐.
PS次还是服用同样的药物处方.
昨天的脑电图测试终得到了反应,但仍不明其原因。
现在神经学家试图去除PS受感染的可能性。事实上,他们好像开始寻找自身免疫性疾病的痕迹.)
Subscribe to:
Posts (Atom)